Showing posts with label Awareness. Show all posts
Showing posts with label Awareness. Show all posts

Saturday, 13 February 2016

Marfan Syndrome Awareness Month

You may or may not be aware of this, but February is the month dedicated to spreading awareness on Marfan Syndrome. 

I am usually the type of person to not give any specific problem special limelight because, in my eyes, it's like saying hey, these problems are more important then others and deserve attention. It's just hard to sometimes pinpoint what problems I should focus on and what problems I should spend less focus on, and what problems I shouldn't talk about at all (if I was to talk about all of them, I would be here forever). 

I usually just opt for focusing on my own personal problems. ASD (Autism Spectrum Disorder), Social Anxiety and Depression among other things I have gone through or am going through whether good or bad so that other people can learn or be helped or educated on my experiences. Especially because I live it, I at least know a decent amount of information on it. 

I don't actually know anything about this topic, though. I'm here to share this blog post from a woman who actually has this syndrome and wants to share as much information about the topic as she can to the world. I'm simply a messenger she doesn't know she has wanting to spread the post out to anyone who is interested in how they can help or recognise people with Marfan Syndrome. I suggest you follow her for more informative, future posts on the syndrome and help spread the message yourselves so less people die/suffer from it, and can get the correct medical help they need a lot quicker. 

Thank you for reading. 

Loz x 

Monday, 16 March 2015

Dating a Person with (High Functioning) Autism

For Autism Awareness day, I would like to take this time to talk about something a little more personal to me, the idea itself was given to me by Loz, and I agreed that it'd be a great idea and a chance to talk about something a little more serious than my personality usually allows me. Now, starting off with how we met, she always seemed a little different to me, but it was just perfectly part of her charm. It was several months I believe, before she told be she had Aspergers. My reaction? Something along the lines of "Oh, well I guess that'd make sense, alright then". And she told me that had been the best response that she'd gotten from having told someone.

Why, why is that the best response? It's because I didn't make such a big deal about it, because that's all people want. To not have their differences highlighted. Do you like it when someone points out a mark on your face? No? Then why would an autistic person like it when you point out things about them? Don't do it. Just do. Not. They aren't wild beasts, they're people. You don't need to make them feel like they'll never be relateable, or that they HAVE to do something great to be important to someone. Why is it when someone is autistic, people only care when they do something great? Why can't we just appreciate people as people?

Now, dating a person with autism has it's challenges, and do you know why? That's because DATING has it challenges. Dating a person with autism just has DIFFERENT challenges. And in retrospect, it is no different than dating a person you just random met in a mall. I love Loz every bit in the wide open space, and no, it isn't any harder just because she has differences. And honestly, it's most likely harder for her having to deal with my odd likes of things such as planes and tanks. Those are her challenges though. ;)

Sorry I have to cut this one short, I have work shortly though, but I may add an edit later on! Thank you for reading.

Thursday, 12 March 2015

Autism Awareness blog post series!

So recently, I have found a tonne of online videos from people with autism/asperger's who have accepted themselves, swallowed their fear and talked about it. Despite a lot of people knowing what they both are, very few people know what they both include - if I got paid for everytime I heard "So, I know what autism is but what really is autism?" or something offensive like "well, it's only autism, it's not that bad, it's just like talking problems, right?" then I would be rich. I feel like - especially for the kids and adults who have autism but aren't vocal - autism awareness is very, very important and for the few of us who are vocal, we need to use our voice in a helpful manor.

Each one is going to be titled a different thing (for example, anxiety) and I'll probably pre-write them and release them throughout the next few weeks. They will be based mostly from my experiences with having ASD, but also from the experiences I know from other people but that will be in a lot less detail.

I hope you take a lot of information away from this and the treatment of autistic people will improve, baby steps!